Monday, 23 February 2009

The ACTUAL Diagnosis

In my previous post (the one that wasn't Song of the Week...) I wrote the following:

Monday is THE hospital appointment where I find out my results... fibromyalgia? Vitamin D deficiency? Coeliac disease? All will soon be revealed! And I can't wait, although I'm a little nervy about it all. You know, each of those results will change things for me completely one way or the other. Right now I'm in limbo.

I went to see my doctor in London today. Firstly, man was that journey exhausting! It took the majority of the day in travelling and I didn't realise how many stairs there were on the underground and at train stations. All of that for literally a 2 minute appointment!

The results are in, and he told me that... *drum roll* ... I have a vitamin D deficiency. My levels are really really low, and that is what is causing the pain. He said he's seen some people with this issue that can barely walk because of it. So I guess I've caught it quite early! I'm now starting on some Vit D supplements and I'll go back in 6-8 weeks and he said I should be feeling loads better by then. Apparently the deficiency is caused by a bad diet and lack of exposure to the sun. So hubby and I are going to start juicing again and really focus on our fruit/veg intake and reduce our cake/chocolate intake and perhaps manage to book a holiday for Easter? Yes please!!

I am SO happy with that diagnosis. Amazing, praise God! etc etc. It was the diagnosis I was hoping for as it is the one easiest to fix! YAY!!! However, I am NOT happy with my GP. When I first went to see them after the aching began, I was told there was nothing wrong with me and to come back in 4 weeks if it still hurt. Shortly after this, I saw this article on the BBC News website and so went back to my GP to ask them to check my vitamin D levels. She practically refused to do the blood test, saying that last time I was tested she checked for something (I can't remember what she said) and that if I had low vit D it would have shown in that result. When I spoke to my rheumatologist in London about that, he said "that's a load of bollocks" (his actual words!!). My GP then proceeded to tell me that the aches were hormonal, and to take Evening Primrose Oil and just get on with it. (!!!) I went down the whole fibromyalgia route thinking it was what I had because I didn't know any better. The symptoms fit, and no one could seem to find anything wrong with me, until now!

I am so thankful for the opportunity to see one of the top rheumatologists in the country, and I will spread the word to people on the fibro-forum I used to visit just on the off-chance that someone might have the same experience as me.

So watch this space for a much much healthier me, I CANNOT WAIT!!


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